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Wausau girl dies of rare brain tumor

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Claire Hornby

WAUSAU, Wis. (WAOW) -- According to a post made on the Claire's Crew Facebook page, Claire Hornby died of a rare brain tumor early Tuesday morning.

Claire was diagnosed with a diffuse intrinsic pontine glioma (DIPG), a rare and inoperable brain tumor in 2019.

Claire's mother wrote in the post "Dear friends, dry your eyes, as Claire's body no longer belies her. I leave you with this video taken on August 29, 2020. She says 'Thank you for your support. I love you.'"

Tuesday afternoon, Claire's mom wrote an update, saying they were accompanying Claire on her last trip to the hospital. At Marshfield Hospital, pathologist Dr. Medina-Flores will remove Claire's tumor to prepare it for transport to St. Judes Children's Research Hospital, and an autopsy will be performed.

"It is our great hope that her tumor will be used to further DIPG research. Claire's ultimate gift to science to benefit those unfortunate few who will walk in her footsteps," Kristen Hornby wrote.

Funeral arrangements for Claire are pending through Helke Funeral homes of Wausau.

Since her diagnosis, the community has come together to help Claire check items off of her "bucket list," like hosting a tv show and swimming with dolphins. Last Saturday, the community came together to bring Christmas early for Claire.

A Gofundme page was set up earlier this year to ease the Hornby's financial hardship and give Claire the best life possible with the time she had left. A Meal Train page was also recently updated with opportunities to help the Hornby's.

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Sierra Rehm

Social Media and Digital Content Manager

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